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stories matter.


We’re all into something by mid-life. Chronic or not.  

I am trained as a social scientist in education - I am curious about how people learn, how to change behaviors, and about resilience - what forces exist that support people’s ability to keep getting up after getting knocked down again and again and again. 

And context is key. My chronic richness is told through my experiences. Stories from my one, singular, white, middle class, insured, heterosexual, married, suburban experience. Especially from what is considered a “rare” disease. It’s not everyone’s experience. It’s mine and mine alone. But, it matters. 

As we grow awareness for chronic health issues, we gather more stories. Then we can find patterns and themes and begin to generalize what factors create the ability to bounce back. Along that path, here is my story. 

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